Privacy and Confidentiality

Follow the links below to find information on privacy and confidentiality issues.

Updated January 2008

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57 Resources Found
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Title:   Privacy and Confidentiality Guidelines
Publisher:   HealthInsite Topic Page
Description:   Links to guidelines on protecting privacy and confidentiality.
Date:   Jun 2008
Title:   Data linkage research - can we reap benefits for society without compromising public confidence?
Publisher:   Consumers' Health Forum of Australia (CHF)
Description:   Significant developments in information technology have brought with them a heightened concern by consumers about their privacy, particularly as it related to personal information.
Date:   Jan 2006
Title:   Health rights for women
Publisher:   Women's Health Victoria (WHV)
Description:   Lists publications and web sites which provide information on our rights in relation to health care and privacy
Date:   Feb 2006
Title:   Challenging ethical issues in contemporary research on human beings
Publisher:   National Health and Medical Research Council (NHMRC)
Description:   AHEC acknowledges that Human Research Ethics Committee(HRECs) tackle complex and sensitive issues such as participant consent, patient safety and welfare, privacy and disclosure, and the scientific merit of research proposals. The kinds of dilemmas faced by HRECs are illustrated in the ten case studies included in the report.
Date:   Dec 2006
Title:   Electronic Health Records 2005-06 Project Overview
Publisher:   Consumers' Health Forum of Australia (CHF)
Description:   This report outlines the aims, objectives and management of the CHF 2005-06 Electronic Health Records project. It discusses the major project activities and key e-health consumer issues from these project activities.
Date:   Jun 2006
Title:   E-health for consumers - practical strategies
Publisher:   Consumers' Health Forum of Australia (CHF)
Description:   Based on the main outcomes from the CHF 2005-06 Electronic Health Records project, CHF recommends practical strategies for ensuring that e-health is for consumers.
Date:   Jun 2006
Title:   CHF submission on the National E-Health Transition Authority privacy blueprint for the Individual Electronic Health Record
Publisher:   Consumers' Health Forum of Australia (CHF)
Description:   The CHF submission on the National E-Health Transition Authority (NEHTA) Privacy Blueprint for the Individual Electronic Health Record considers a range of key issues including governance, audit functionality, sensitivity labels, what controls individuals have over information on the Individual EHR, and secondary uses.
Date:   Aug 2008
Title:   Privacy and genetic information
Publisher:   Consumers' Health Forum of Australia (CHF)
Description:   When a person is diagnosed with a genetic condition, where does their right to privacy and their family's right to know begin?
Date:   Apr 2008
Title:   Submission on the Access Card Consumer and Privacy Taskforce Discussion Paper Number 1: The Australian Government Health and Social Services Access Card
Publisher:   Consumers' Health Forum of Australia (CHF)
Description:   In July 2006, CHF made a submission to the Access Card Consumer and Privacy Taskforce Discussion Paper Number 1: The Australian Government Health and Social Services Access Card.
Date:   Aug 2006
Title:   Broken privacy promises - the NSW e-health experience
Publisher:   Consumers' Health Forum of Australia (CHF)
Description:   The Chair of the Australian Privacy Foundation discusses consumer trust in electronic health record systems in NSW.
Date:   Jan 2006
Title:   Disclosing to parents newborn carrier status identified by routine blood spot screening
Publisher:   John Wiley and Sons, Ltd. for The Cochrane Collaboration
Description:   Newborn screening programs may inadvertently identify infants who are unaffected by serious in-born errors such as sickle cell disorders or cystic fibrosis, but who are genetic carriers. This will not affect the health of the child but may have importan...
Date:   Aug 2004
Title:   E-health is a valuable tool
Publisher:   Consumers' Health Forum of Australia (CHF)
Description:   As the e-health movement continues to gain momentum across Australia, consumers are playing a greater part in driving the e-health direction to meet consumer needs.
Date:   Jul 2008
Title:   CHF e-Health industry and consumer workshop: 'What's next in e-health' Workshop Report
Publisher:   Consumers' Health Forum of Australia (CHF)
Description:   The Consumers Health Forum of Australia (CHF) held an e-health industry and consumer workshop, 'What's next in e-health' in central Sydney on 27 November 2007. During the workshop, participants discussed e-health success stories and sticking points and identified practical steps for making e-health work for consumers.
Date:   Apr 2008
Title:   Alice Springs E-health Consumer Discussion Session Report
Publisher:   Consumers' Health Forum of Australia (CHF)
Description:   CHF and the Health Consumers Voice NT held an e-health consumer discussion session in Alice Springs on Wednesday 6 June 2007.
Date:   Jun 2007
Title:   Submission to the Exposure Draft of the Human Services (Enhanced Service Delivery) Bill 2007
Publisher:   Consumers' Health Forum of Australia (CHF)
Description:   Submission to the Exposure Draft of the Human Services (Enhance Service Delivery) Bill 2007, consumers' expectations of the access card.
Date:   Aug 2007
Title:   Western Sydney E-health Consumer Discussion Session Report
Publisher:   Consumers' Health Forum of Australia (CHF)
Description:   CHF and the Council of Social Service NSW (NCOSS) held an e-health consumer discussion session in Western Sydney on Wednesday 30 May 2007.
Date:   May 2007
Title:   Consumer Issues about the Human Services (Enhanced Service Delivery) Bill 2007
Publisher:   Consumers' Health Forum of Australia (CHF)
Description:   CHF made a submission on the Human Services (Enhanced Service Delivery) Bill 2007 about the Access Card.
Date:   Jan 2007
Title:   CHF Quality Use of Medicines Engagement with Country Awareness Network (CAN), Victoria
Publisher:   Consumers' Health Forum of Australia (CHF)
Description:   CHF facilitated a Community Quality Use of Medicines engagement with clients of the Country Awareness Network, previously known as the Country AIDS Network (CAN) in Bendigo, Victoria in February 2005.
Date:   Feb 2005
Title:   E-health National Information Workshop - Canberra 29-30 May 2006
Publisher:   Consumers' Health Forum of Australia (CHF)
Description:   CHF conducted an E-health National Information Workshop in Canberra on 29-30 May 2006 to provide CHF members and consumer representatives with updated information on the progress of e-health initiatives in Australia. The workshop was an important forum for consumer debate and input to CHF.
Date:   Nov 2006
Title:   Confidentiality guidelines for consumer representatives on MSAC Supporting Committees
Publisher:   Consumers' Health Forum of Australia (CHF)
Description:   These guidelines to assist consumer representatives on Medical Services Advisory Committee (MSAC) supporting committees may also help others to clarify confidential committee requirements, bearing in mind requirements may differ and should be discussed within each committee.
Date:   Jan 2002
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